Discussion about this post

User's avatar
Mel Courtney-Holt's avatar

Nothing like as tough as the experiences of grief of the good people here, but my current experience of grief is of my mother-in-law, who died last month at 87 following a decade of Alzheimers (so it's true and it isn't that we'd already 'lost' her). I recognise in your stories the disparity of what l/we feel versus what we're told we should feel, and the alienation it engenders.

We realised that she was unwell when my f-i-l died suddenly in early 2016, and amidst the shock, we were more worried about how to care for her (and 2 small children) than about the grief, even though we loved him. We were younger than most people in this position (38) and felt alone with grief and caring - not doing enough for her or the children.

Agencies always called me about her care, not her actual only son (because l'm female and have an inbuilt affinity for such things?!) and agreeing to DNR orders, hospital treatments (or not) and palliative care felt like a draining responsibility which l couldn't talk about. I kind of resented that my husband got away with it and didn't want to talk much about it, and l also felt l needed to support him because she was his actual mum, and his grief was more profound.

We're told that the anticipatory grief we felt as the Alzheimers progressed (it's not called "the longest goodbye" for nothing) and the nearly-deaths would make the actual grief easy to handle. Also, we "must feel so relieved" that she's finally died. But that's not the lived experience and it makes grief harder.

Expand full comment
Radha's avatar

I'm so glad you shared your perspective about the untold aspects of grief. We have very similar situations. My husband also had a lot of secrets & no plan to protect me after his self inflicted demise. I've spent a lot of time cleaning up his mess after being set up for a rough time. Then losing everything I cared about both physically and emotionally. The guilt of actually feeling healthier and more peaceful after a death, while at the same time being willing to do anything to get them back, is a tough burden to carry. I'm trying to look at the positives and the good times and reframe my guilt in missing his pain and my own.

Expand full comment
17 more comments...

No posts